Phase 4 – A little all over the place

If you’ve been reading my blog, you’ll know that I’m cathartically documenting the journey of parenting (for want of a better word) my 11yr old son who has a sub-type of autism known as Pathological Demand Avoidance. The latest phase of this journey can only be likened to navigating the various, shifting lands of Enid Blyton’s The Magic Faraway Tree. For those of you unfamiliar with the story; a group of children climb an enchanted tree, meeting some magical characters who live in it along the way; Moon Face, The Saucepan Man, Dame Washalot and the Angry Pixie. At the top of the tree, there’s a ladder leading to a magical land. This land is different on each visit, because each place moves on from the top of the tree to make way for a new land, obviously! Some lands are extremely unpleasant and others are magical, like the Land of Do-as-you-please. Apologies, I digress…..

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Image by JanBaby via Pixabay

Finn started on the anti depressant/ant anxiety med, Fluoxetine just over four weeks ago. Word on the street is, it takes 4-6 weeks to properly kick in. Two weeks in and we entered the Land of Agitation, with Finn on the throne as King Skittish. There was no reading him; he could go from enchanting to enraged, flying to flailing in seconds. Thankfully this land ‘did one’ and was replaced with the glorious Land of Half Term, thriving in a ‘no school’ atmosphere with the added bonus of halloween on the horizon. He relishes in halloween – I can only surmise that it’s down to his  penchant for role play, the opportunity to spend time with friends and the freedom that comes with it…..carve whatever you fancy out of a pumpkin, wear what you want and eat chocolate at will. He chose to be the Grim Reaper complete with a one way mirrored mask and armed with a scythe – what could possibly go wrong?

For starters, I made the grave mistake of not managing expectations (when will I learn?) Based on past precedents, Finn was expecting a neighbourhood halloween party or at the very least, for a few friends to be joining him (his sister and a couple of female friends from the street were not cutting the mustard, as lovely as they are). The downside of the mask was that his vision was impaired so he kept falling over, on one occasion indignantly exclaiming “Who puts a tree stump in the middle of a driveway?!” Thankfully it was dark enough to hide my amusement. There were some lovely interludes: he removed his mask when an older lady answered the door and he made a young ‘trick or treater’s’ face light up when he pretended to be terrified of him. This didn’t stop Finn proclaiming it as ‘the worst halloween ever’  but all was not lost; I witnessed him clawing control back from the jaws of a meltdown, which constitutes improvement and given that he was brandishing a scythe, a colossal relief too.

With the start of the second half of the school term, came the Land of Uncertainty, dotted with distressed reactions to anything that involved making a decision but scattered with glimpses of a happier boy. It’s all in the smile and a twinkle in his eye which I’ve missed so much –
One nil to Fluoxetine.
We’re a little stuck in this land, uncertain about Finn’s future; will he ever manage to go back to school, where will he go to Secondary School, will he manage to make peace with himself, will he end up hurting someone really badly one day, mid meltdown?

Amongst all the uncertainty,  are some consistent certainties; my boy is capable, caring and courageous on one side and confused and crestfallen on the other, but we are all muddling through together and doing the best we can, and sometimes, when the going gets a tad tougher, that’s just going to have to be enough.

2 Comments on “Phase 4 – A little all over the place

  1. I’m interested in your views on PDA, Autism, Asperger’s being linked to childhood vaccinations?! I’ve recently been made aware by a, what I believe dangerous celebrity called Jenny McCarthy and her book called The Epidemic of Autism or something like that!! She believes that vaccinations are the cause of all the conditions on the autism spectrum and that they can be eradicated if we stop immunising our children. How do you feel about this? Love your blog btw, can’t wait for the next submission.

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    • Thank you Nicola! This is such a hot debate and I’m woefully ill equipped to enter it on a clinical level. My views are personal but I think it’s dangerous to suggest a link between life saving vaccines and autism, especially given the irrefutable evidence against it. I don’t know enough about Jenny McCarthy or her son to comment and I’m happy for her that she’s seen improvements in her son’s condition by following her chosen path, but I would argue that no autistic child is the same and Autism is perfectly capable of existing with a host of other health problems that might exacerbate aspects of ASC. Again, this is only my personal take on it. Glad you love the blog 🙂

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